We are almost in double digits! Today seemed to be just about the longest day here so far, even though we were done and at the zoo by 3:30 this afternoon and we were at the hospital until 7 last night.

Today Jonah did a Clindamycin challenge. He tolerated it well with only a few red spots and slightly black eyes. Now that it’s had a while to sit, he seems to be popping up with a few other hives now that are about the size of a pinprick so we will see tomorrow whether this is officially a pass or a fail.

Tomorrow is a busy busy day. We have to be at NJH at 7:30 and we will see Dr. Leung at 8 am. We will then meet with the nutritionist at 10:00 and Jonah has art therapy at 11. After all of the morning appointments are taken care of, we will start the Keflex challenge as well to see how he handles that drug. At some point tomorrow, the patches will come off of Jonah’s back and he will be able to get into his soaking routine. Even without the bath for 24 hours, we are already noticing his skin drying out again. This is a little frustrating for me, but I have to remember that there are 20 layers of damaged skin there and it will take up to a month for all of them to be healed.

Hoping tomorrow is the day that we get all of this tied together for Jonah…lots of big appointments!