Today was whole lot of mentally and emotionally exhausting stuff. We did a lot of whole kid stuff with Jonah today and looked into how the chronic illness is affecting him as a little person. The long and short of it…he’s doing extremely well considering everything. He did art therapy, behavioral studies, and met with the child physchiatrist and did a bit of ADHD testing. Be shocked. ADHD is confirmed completely and without a doubt. He does have some fears and trepidation’s about his skin and the way others see him. He is big enough and mature enough to notice that he is different, but his responses in dealing with it are extremely appropriate and gracious. He’s amazing.payday loan
The child psychiatrist had some suggestions on maybe adding a medication for days when he needs to be hyper focused, but for the biggest part of things, he’s happy with the medication he’s on and with the low dose that our doctor has him on as well. He is also a holistic medicine practitioner and fully understands my desire to not overmedicate at all ever, but agreed that we were at a quality of life issue for Jonah before, especially considering that scratching is one of his fidgets and that is a problem for him.
One of the biggest questions that I have had and will continue to have is the effect of the divorce on Jonah and how he handles it. He in true Jonah fashion has handled that as well as could be hoped for as well. It’s been a lot of transition for him in the last 6 months with that too in his dad moving from across the street, and in Jen and Jase both getting added to his life in the same time period. He is secure in the fact that he is so so loved by all 4 of us and is also very aware of both his dads and my own giftings and shortcomings. This kid is wise beyond his years for sure.
Yesterday also included a Dexa scan to check on his bone density and verify that he doesn’t have any long term damage from high levels of steroid use (2 broken arms in a year tends to make you ask questions like that). I don’t anticipate anything more than him just being my kid and accident prone, but just in case…
Last night when we got back to the Ronald McDonald house, we were gifted some pretty fantastic tickets to the Nuggets basketball game. It was the first time either of us had been to an NBA game…and we might both be a little bit hooked (much to the delight of my favorite basketball fan). It was a late night, but a ton of fun. I’m definitely glad we went.
Today, Jonah and I will be participating in a research study, more skin care and wet wraps (he’s already looking SO much better) and final meetings with everyone. We will also get a new care plan for both school and home and future testing instructions.
You are both amazing, and I’m glad to be part of your tribe. You are both ever in my prayers, and I am so glad you have a “favorite” person in your life who is making things even better. Love you madly. 🙂
Sounds like progress is being made. You are both amazing and wonderful!