It is looking like we might get dismissed from NJH a day early! We can’t change our flights or anything from Saturday, so Jonah and I will have a day to relax a bit while Jason works on Friday. The exception to this is if we need to see another specialist between now and when we go home, but we shall see tomorrow 🙂

We do have an official asthma diagnosis and will leave with a shiny new inhaler to go with it. Jonah has pretty consistently been in either the very bottom of his green zone or the top of his yellow zone for the last week. We will see at home if the altitude has anything to do with that.

Jonah’s patch testing came off today. He has a for sure positive on the ethylenediamine that was positive 2 years ago and has a pretty confident it’s positive on the nickel which is prompting the low-nickel diet that he will be starting when we get home and can get a plan worked out for it. It’s a doozy…It’s kind of counter intuitive to the way that we have been feeding him. A lot of things that are grown close to the ground are high in nickel. We are also going to need to get with the dietician again tomorrow since the government will reopen and she can check with the USDA to see which locations will be the best for us to get produce from since the level of nickel in soil varies with the region that it’s grown in.

We also found out that Jonah’s ANA numbers (which they expected to be low due to the amount of steroids he has been on to try and control all of this mess) were positive but not hugely significantly positive. A normal negative is between 0-40 and Jonah’s is 49. This was a bit surprising because they were expecting it to be in the 0-5 range. Dr. Leung wants a consult or at least an opinion on the labs from the rheumatologist to make a decision on whether or not this needs to be pursued further. We will find out the answer to that as well tomorrow, hopefully.

It’s been a looooong ten days around here, but Jonah looks like a new kid. I hope that when we are able to get the sleep under control, it will really complete the journey of trying to get him to everyone else’s normal way of feeling and not just his own piece of Jonah normal.