Day seven is there…you just missed it… I promise. No really, it was a completely non-climactic day and really not worth a whole lot of time or energy for me to write about it or for you to read it.

Well…We are still hanging out with a gluten free kid. Jonah had his wheat tolerance test today. He had to eat cream of wheat in increasing doses until he got to 1/3 of a cup and then wait 2 hours. He ended up with watery everything (eyes and nose), itchy, pink lips and sneezes. He didn’t have any hives or anaphylaxis so it’s not a true IGE reaction, but it was enough to definitely make him uncomfortable so we will continue to avoid wheat for him. They suspect he probably has celiac as well, but with it being so far removed from his system, there is no way that the test will come back positive.

We met with an ENT today, as well. While we’re still waiting on the sleep study results to solidify his recommendations for Jonah, just from the exam, he is recommending a more aggressive surgery for Jonah to open up his night time airway. In the event that the sleep study comes back totally clear, then we will leave well enough alone. If it does not, I will leave it up to our at home ENT to make the call on whether or not opening up his sinuses (or whatever else is blocked up) will be more beneficial then a CPAP over the long term. He also sucked out some ear grossness that had built up from who knows what, but would hopefully prevent it from blocking up his tube and starting that vicious cycle again.

Jonah is currently rocking about 36 different chemicals on his back on a patch test. They will hopefully give us some guidance on the contact issues he is having. Hopefully this is the root of most of his problems.

Tomorrow is a pretty low key day from what I can tell based on our schedule. The parent class is on relaxation (HAHAHAHA!!!!) so that’s kind of awesome. We have our normal appointment with Dr. Lanser and Dr. Szefler and Jonah will have an art therapy group. We will also be doing a Clindamycin challenge to see about possibly getting some antibiotics back into his repertoire of treatments.
Wednesday we will meet with Dr. Leung again and with Nutrition to try and come up with a reasonable low nickel diet. Jonah’s patches will also come off on Thursday with another antibiotic tolerance test as well.