Day three

 

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After meeting with Dr. Leung this morning, the rest of the day was kind of spent trying to make all of his recommendations happen. We switched Jonah’s face cream from a steroid immediately and will begin switching his body cream away from a steroid as well. We are in the process of scheduling a few procedures at the children’s hospital that partners with National Jewish to get some additional results. The sleep study is still trying to be scheduled and they are also trying to get him in to get some patch testing and skin scrapes done as well. He has had the patch testing done before, but it’s been a VERY long time. They will basically put a large bandaid with multiple different types of chemicals and other things he comes in contact with on his back and then leave it there for 2 days and then pull it off to see how his skin reacts. For those two days he can’t touch it or mess with it at all. It will make him super happy in the sense that he won’t have to do a bath over those days, but I’m sure it will be irritating in it’s own right. We haven’t done skin scrapings before, but they really don’t sound enjoyable at all.

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Jonah also did what they call a free run test today. He ran for over half a mile and then had to stop in the middle of it to do breathing tests. Somehow his readings got better the more that he ran. He’s a unique kid. He kind of enjoyed running that long. I’m glad that he’s figured out how to run since baseball season last year 🙂
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When we got back home today Jonah had a package from Aunt Becky with a card and a new book and he was super excited to get to open mail. He is pretty easy to please… It makes Christmas easy.

I’m not sure what is going on tomorrow in all honesty. We did have to start antibiotic drops on his ears, and he is draining a lot of colored junk so they wanted him to have an ENT consult at some point in the next few days. I know that I have a lot of homework for Dr. Leung to turn in, so I’m assuming we will meet with him again in the morning. We will also be meeting with our social worker for the program as well again. Please continue praying for good solid answers and a solution for our boy.

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Also, In Denver, Starbucks are in a barn sometimes.

4 thoughts on “Day three

  1. Hmm.. YEAH for no bath tomorrow… BOO for skin scrape — Sparkey had several done and wasn’t a fan, but J will be just fine– promise something for being brave, k?? Thanks for the updates– you are a saint!! Prayers and more prayers!!

  2. It is all really interesting and seems like they CARE and are not going to waste your time while you are there. Thanks to God for providing this for Jonah. 🙂

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