I wanted to post this while I remembered pieces of what the super specialist said.

We just saw Dr. Leung, who from the response I got from our allergist (Dr. Perry), is pretty much the begin all and end all to allergy/immunology/eczema research. I went and googled him, and I believe him.
He threw a lot of things at me and I caught very very little of it, but gave our fellow some clear direction to run with. We will see him again in a few days. The biggest piece of what we got out of what he said is that Jonah is “very very unusual” which we were already aware of, but to hear it from someone with prestige in the field that we’re looking at with Jonah was strangely reassuring.
From what I gathered, he thinks he may have a unusual type of psoriasis on top of the eczema. There is also a good chance that Jonah has had a pretty consistent staph infection that presents non-traditionally for quite a while. He also suspected a few other types of things that I honestly have no idea what he was talking about. This guy is really, really smart and he is intrigued by Jonah, which is pretty much exactly what we’ve been praying for.
We are being sent over to one of the partner hospitals to see one of the dermatologists and one of the ENT’s since we’re still rinsing out grossness on top of the other issues since he already has known ENT problems. The dermatologist will most likely be doing some pretty extensive patch testing while we are there. We are also seeing nutrition as well at some point in the next few days to see if we can find any preservative that Jonah has eaten or come in contact with that would cause any of these issues.