So after an EXTREMELY long day yesterday (up at 5 am…went to bed at 12 am in a different time zone) I was definitely not appreciating the internal alarm clock that went off at 5:45. We checked into National Jewish at 8:30 this morning and did a tour of the unit, met our staff and got acquainted with procedures here and that sort of thing.

We have seen 2 specialists already and will see at least one more tomorrow. I really like our primary doctor. He and Jonah have made fast friends and he seems to get the frustration that we’ve had. They ordered skin testing and did half today and half tomorrow. Everything came up negative, just like always.

The only definitive from today is that Jonah has asthma. It’s not bad enough to really require any intervention at all at this point, but it does need to be monitored. Jonah had his first official NJH wet wrap. He did not appreciate the face wrap or wet pajamas at all. After they wrapped him up, we went and found a playground where Jonah had a chance to unwind and run some.

They will be running labs first thing in the morning, so they can minimize the number of times they have to stick him. He also got to go to art therapy today where he got to draw an island and take all of the things that make him happy and healthy. He took his vitamins, creams, hearts, his family, Mr. Brian (our chiropractor) and Dr. Perry (who was riding a horse???). He also made sure there was a playground there. He loved meeting other “itchy kids” Tomorrow is a day of more skin tests and labs. There are only 4 other kids here so he’s getting lots and lots of attention.

Also tonight we are noticing a reaction to one of the steroid creams and we remember why we had stopped that one. We will try it one more time tonight and see if it reacts again. If it does that cuts out one of the major medications out of our repertoire.